I’ve had symptoms as long as I can remember, but finally received an unofficial diagnosis at age 15.
It took another six years for me to begin to understand why my body functions the way it does, and how I can regain a significant amount of control over it. Until I made that journey in my own time, there were no answers from the medical community, only bewilderment and puzzled stares.
Ehlers-Danlos is a group of connective tissue disorders that affects every aspect of anatomy and function in the body. There are many types, all with some level of overlapping symptoms. We will be discussing the hypermobility type, as these folks seem to be coming out of the woodwork, and they need answers.
The most recognizable symptom as a kid is frequent injuries in the form of dislocations, subluxations, or injuries that seem just plain weird.